Clinical Trial: Cancer

Neutropenia International Registry (PRO00000381)

Full Name

Severe Chronic Neutropenia International Registry


Information from the participant's medical history and medical tests will be released to the Registry office at the University of Washington in Seattle, Washington. The registry requests bone marrow slides to be sent with the registration information. The slides are used for testing purposes. If requested by the participant, the slides will be returned. Names and identifiers will be removed from each slide, and will be listed with a code number only. The participant's doctor will be required to complete forms when the participant enrolls, and about once a year thereafter, for as long as the participant remains in the registry. The forms include name, address, birth date, gender, race, referring doctor, diagnosis, medical history, including those of infections, growth and development markers, and records of treatment for neutropenia. The researchers will also ask for information about the health status of the participant's immediate family (children, sisters and brothers, parents and grandparents) and if they have had leukemia or other blood disorders. Participants will be asked to maintain a calendar to record treatments that they received for their neutropenia, and if they became ill or were hospitalized. Completing the calendar is voluntary.


Inclusion Criteria

Inclusion Criteria-including but may not be limited to:

Must have a confirmed diagnosis of severe chronic neutropenia

Must be greater than 3 months old

Must not have neutropenia known to be drug induced

Must not have aplastic anemia

Must not have HIV disease

Must not have chemotherapy induced neutropenia